It is a rainy dark morning here in New England. I skipped out of my morning run today so I could bake a pumpkin apple bread and finally do some writing. It is starting to smell yummy! I have so much to write about, as it has been a pretty busy and exciting last couple of weeks.
My mom and dad flew in from Florida to visit. We all had missed them so much. Our relationship with them is so tight. A blessing that has come out of my illness has been the incredible relationship we all have. My parents were so supportive over the last year and continue to be. Mike and I would not have gotten through the last year, was it not for my parents. They literally left their lives in Florida to come and take care of my children. They have become so intimate with the kids schedules and routines. In fact, even when they are back at home in Florida their daily calls are to check in to get an update on the kids' days. Watching their relationship blossom into this incredible bond has been such a gift. They have also been so strong and supportive of me. They listen to me during my dark moments, as well as embrace all the happy times. I never understood what people meant when they discussed the gifts that come from cancer. Now I get it.
On the 17th of September we all participated in the MMRF Race for Research in Boston, MA. It was a beautiful morning. We had about 60 members of our team Cancer Sucks But Jeanie You Rock! Together, we raised over $12,000. And the donations are still coming in! We had a big presence at this years' race. Our team had a tent where we all met. There we had hats in rainbow colors for everyone to wear. My Uncle John, being the fun guy he is who will do just about anything, agreed to wear the rainbow costume.
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| My Lovable Uncle John! |
It was so wonderful to see everyone who have been so supportive of us during the last year. This was a celebration of how far we have come. I say "we", because we have all had to go through this cancer diagnosis together. My family, friends we all went through the many emotions together during this journey. Last year we were all terrified of this Big "C". Scared of the year ahead. Now, 10 months later, I have fully recovered from my stem cell transplant and I am in a complete response, zero M-Spike (ie: no Myeloma detected!) Prior to the race, I spent time talking with fellow Myeloma patients as well as families who have lost loved ones to this disease. Their stories were beautiful and truly inspirational. Some families continue to participate in the MMRF Race as a way to honor their loved ones and to be encouraged by people like me who are benefiting from all the advances in treatment.
This year I was honored with the Spirit of Hope Award. It truly was an incredible moment to listen to my story being told in front of all the people gathered that morning. And then to step on stage with Mike and the kids to accept the award, I was speechless. I couldn't help but be overwhelmed. How did someone like me get here? I can still feel the fear and sadness I felt when I first got diagnosed. I remember how weak and beaten down I felt those first few months. And now I was on stage feeling strong and healthy looking out at the crowd of people many who had been my shoulders to cry on and sources of strength over the last year. Tears rolled down many of their cheeks. It really was a moment I will never forget.
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| Receiving the Spirit of Hope Award |
My beautiful kids were selected to start the race. They were so excited to do the countdown and blow the air horn. During the race I had the privilege to personally meet Dr. Kenneth Anderson. and Dr. Paul Richardson, both whom are leaders in the Myeloma Community for their research. For the first half mile, Dr. Richardson, Suzi and I chatted about running and my treatment. This was real treat to speak have this awesome opportunity to talk with a man I am so grateful for.
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| Mike and I with Dr. Richardson and Dr. Anderson! What an honor! |
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| My Awesome kids starting the race! Even with chatting with so many people while running and listening to such compelling stories, Suzi and I managed to both tie for second for our age group! This seemed so perfect! Suzi has been so supportive with me during my journey. And together we are committing our efforts to raising money for the MMRF. We were so excited that we surpassed our goal of $10,000 this year! Her dedication, love and loyalty is truly one of my greatest blessings in life. When I was sick she cared for my children, as if they were her own. A lifelong friend who has been more like a sister to me since the age of 4. This year we have even closer than ever before. We have running and training together since April for our participation in the Bay State Marathon in October and Boston Marathon in April 2012. This past week Suzi injured her hip and will be unable to run in the Bay State Marathon, which is in less than 3 weeks. She is devastated. It just will not be the same without having her by my side chatting about life and whatever other subjects come up during a long run of over 4 hours. We are hoping she has a speedy recovery, so that we can run over the winter and train for Boston. But for Bay State I know she will be on the sidelines cheering me on (even if she is holding crutches).  Also on our team, our close friends Beth, Jay and their daughter Kaitlin all placed for their age groups, as well as our niece Chloe! Team Cancer Sucks But Jeanie You Rock was a powerhouse of incredible athletes this year! After the race we spent time speaking with so many other team members. Patients themselves, as well as people who had lost loved ones. They would come up to me and share their personal experiences , give me a hug, and tell me to never stop fighting. At times, it was too difficult to hold back the tears. So many of these people I had never met before, yet I felt that we were all connected. We have all been thrown into this Multiple Myeloma Crazy World. It is not something we asked for, yet this is the card we have been dealt. We have all had to face the pain, sadness and sometimes loss that this disease brings. Yet on this day, we were all filled with love, happiness and real hope for the future. It truly was an unforgettable day. The day topped off with a fun party at my Aunt Sue and Uncle John (you know the rainbow guy!) It was such a fun day My Uncle John, a beautiful singer, dedicated and sang a beautiful song to me. Again, tears strolled down my face. The love I felt on that day by my amazing Aunt Sue who put together the party and all who attended was overwhelming. I am so so blessed to have each and everyone of them in my life. Well, the rain is still falling and my kiddos are going to be coming off the bus soon. I hope you all feel as blessed and peaceful as I do today. Love, Jeanie |
